Families Against Neuroblastoma

Mission

To relieve the suffering caused by Neuroblastoma.
To raise awareness of Neuroblastoma and its signs and symptoms.
To Cure Neuroblastoma


Families Against Neuroblastoma is the first port of call for anyone who has 
received the devastating news that their child or loved one has Neuroblastoma.
We are a charity solely dedicated to providing support, information and assistance
in all aspects of dealing with Neuroblastoma, we also fund specific research into
cutting edge treatments for this terrible disease.We can help you with all the questions that arise from initial diagnosis, and give
you further advice on possible treatments not currently available on the NHS or in
the UK. should you wish to opt for one of these treatments, we will support you
in whatever decision you make. We can assist you with launching and running an appeal for your child
Regardless of the treatment you choose we believe life is for living and we provide
family fun days out, treats and wishes, and holidays, with our goal being to try to
put a smile on everyone's face whenever we can :)
FAN is run by families for families and we weolcome all families affected by Neuroblastoma we believe Together We Are Stronger.



You can donate at  http://www.justgiving.com/FAN



Website  http://www.familiesagainstneuroblastoma.org/
Facebook Page  https://www.facebook.com/FamiliesAgainstNeuroblastoma


Follow them on Twitter  https://twitter.com/fan_official

Fighting Cancer Together and Winning. By Cameron Von St. James

Fighting Cancer Together and Winning

New update from Cameron 

Courageous Mother, Wife and Survivor of #Mesothelioma

http://www.mesothelioma.com/heather/#.UZEuraJvNCo

After my wife was diagnosed with mesothelioma, she said many times she cannot even begin to fathom how I dealt with it. I have only spoken to her once about what it was like caring for her during this heartbreaking time. I am hoping this will make my experience more understandable to both her, and the countless other families who are experiences similar tough times.

My wife was diagnosed only three months after our only child, Lily, was born. It was very difficult going from a time of complete love, joy and happiness to a world of fear, sadness and despair. When we were given this horrifying news my wife sat crying as I kept thinking to myself "What are we going to do?"

I felt so lost and incapable of dealing with this news.  I was on the verge of breaking down when the doctor started talking to us about treatment. Like many other days during this time, we would be forced to make difficult decisions while at the same time my heart and mind were wracked with fear.

When my wife was diagnosed I was angry, very angry. I was filled with so much rage and fear that it was very hard to control my feelings. At times, my anger came out in bursts of profanity when speaking to others. It all seemed so unfair. As time went on, I realized how selfish I was being. My wife and daughter needed me, and the last thing they needed was to see how scared I truly was. I managed to control my rage better and remain strong for my wife and daughter.

During this time, I felt so overwhelmed with all of the new responsibilities which suddenly fell on me. I had to work, take care of my wife and daughter, our home, our pets and do nearly everything that once was a shared chore.  I was happy to do this, but I quickly became overwhelmed with the sheer amount of tasks on my to-do list.  I learned that I needed to prioritize and create a routine.  I also needed to seek out the help of others. Thankfully, we did have many family members and friends that offered to help us out when we needed them most. I cannot imagine what we would've done without them.

During one period of time, life was particularly difficult. My wife, Heather, had to have surgery in Boston and then went to South Dakota to stay with her parents to recover and get ready for her next round of mesotheliomia treatment. Lily had already been staying there during Heather’s treatment, which left me alone at home to focus on working to support my family. Because of the distance between us, I was only to see my wife and daughter on one occasion during the whole two-month period.

On a Friday evening, after getting off from work, I began the 11-hour drive to go see my family. The trip was long and hard because a snowstorm had blown in. I slept a few hours in the car, waiting for the plows to come through and clear the roads before I could continue on my way. I arrived on Saturday morning, exhausted but so excited to see my wife and daughter.  I spent a handful of precious hours with them on Saturday and Sunday morning, before packing up and heading back home to be  at work on Monday morning.

It was hard being separated, but we honestly had no other option. Lily had to be taken care of, Heather had to have treatment and I had to work. It worked for us and I do not regret this decision in the least. This is probably the most important lesson that I have learned as my wife’s caregiver:  we cannot regret any of the tough decisions that cancer forces us to make.  Instead, we need to take comfort and rejoice in the fact that we retain the ability to make decisions at all.  It gave us a small amount of control over a situation which, all too often, felt completely out of our control.

Six years later, my wife is healthy once again. This was a struggle we would never wish on anyone, but we did learn from it. We learned to accept help from those who offer it and to have faith in ourselves and our ability to get through difficult times together.

Read Cameron's Blog Here:

http://www.mesothelioma.com/blog/authors/cameron/

http://www.mesothelioma.com/mesothelioma/

PS, Thank you to Cameron for this information, xxx jenny

Steph’s song seeks to inspire ;‘It Wasn’t Meant to Be’

Steph Lott with sons Brad, five, Joe, seven and Joshua, two.

Steph Lott a musician whose children lost their dad to cancer has written a moving charity song she hopes will inspire a major performing artist to help make it a fund raising success.

Steph's ex-husband Mick Harris, father of her three oldest sons Joe, Brad and Josh, died in May following a year-long battle with cancer, aged 45.

The experience inspired her to write and then record ‘It Wasn’t Meant to Be’, available on iTunes here ;http://itunes.apple.com/us/album/it-wasnt-meant-to-be-single/id553984567 with all proceeds going to Cancer Research UK.
Alsoavailable to download from amazon too ;http://www.amazon.co.uk/dp/B0091KFACS/ref=cm_sw_r_fa_dp_jzGoqb0ADF9G4

But Steph, 28, is hoping to take it to the next level and raise thousands for the charity by persuading a household name performer to take her song on to the national stage.

Steph has recorded her own version of the song in a local studio with help from fellow North Devon singer songwriter Chris Millington, who added instrumental accompaniment to her vocals.

“I am a country singer so ‘It Wasn’t Meant to Be’ is a bit of a slow country song,” she said.

“My main quest in all this is to find an established artist to take on the song so we can raise as much money as possible. I think it would suit someone like Leona Lewis and she would do a good job of it.

“I really wanted to do something to help raise money for Cancer Research,” said Steph, who with Rob forms the duo Despite Water

Anyone who would like to help Steph raise money can do so via http://www.justgiving.com/Stephanie-Lott

Article and picture by NORTH DEVON GAZETTE

* Watch  ‘It Wasn’t Meant to Be’ by Steph Lott.

Interview with Steph Lott on ITV WestCountry, 7th August 2012 about her new song in aid of Cancer Research UK and the Story behind the Song





Check out Steph's Blog Here ;CHASING DREAMS

Harry Moseley's Mum writes a book about her little Hero

Georgina Moseley 

THE mum of a cancer-stricken Birmingham youngster who raised more than £650,000 for charity before his tragic death has penned an emotional book charting his inspirational story.

The Harry Moseley Story – “Making it Happen”, was written by Georgie, of Sheldon, in the hope of raising more awareness of her son’s work.

Eleven-year-old Harry not only made bracelets to raise cash for various charities, he also donated gifts he received to other people and visited schools and businesses to talk about his ideas – all whilst battling a brain tumour.

He lost his fight against the illness in October last year, four years after he was diagnosed.

Georgie admitted that producing the biography has been a tearful journey, but she added it was also one of Harry’s last dreams to have his story told.

“He would have been so proud of the book,” she told the Birmingham Mail. “I only wish that it was an autobiography rather than a biography. I’m just writing it on his behalf.

“It has been a real labour of love to put together. There have been emotional moments and I cry whenever I have to read through it again. But I believe Harry deserved this.”

She added: “The story relieves Harry’s life, but focuses more on when he was diagnosed and how he selflessly helped others. A lot of people know about the bracelets, but they don’t know about the other things he did.

“I wanted to tell people about his work and this was the perfect way to do it.”

She decided to write the biography earlier this year with the help of ghost writer Simon Goodyear. All the money raised from sales will also go to charity.

“It’ll make the perfect Christmas present,” Georgina added. “It’s a true story of an inspiring and special boy.”

Harry gripped the nation by making and selling beaded bracelets all by himself, with all the proceeds he raised going to charity. He also organised and arranged to meet CEO’s of large organisations and did presentations at school assemblies and at large public events talking about his business ideas.

He also befriended many people via the social networking site Twitter including many famous celebrities from all over the world.

*The book, priced from £9.99, plus postage and packaging, is available by logging onto http://www.dbpublishing.co.uk/buy/the-harry-moseley-story-making-it-happen-paperback_12230.htm

Please continue to support Harry , His website is here; www.hhho.org.uk 

This is a tribute message to Harry "The Boss" Moseley. A Small boy that made a big change... Thank you Harry for your inspiration, your love, your energy and your smile.. You will be sadly missed by everyone who knew you and of you. May your bracelets brighten up the sky and far beyond.. Love from us all xx  


Read More http://www.birminghammail.net/news/top-stories/2012/09/10/harry-moseley-s-mum-writes-book-about-her-little-hero-97319-31800246/?utm_source=dlvr.it&utm_medium=twitter#ixzz276uZYsiR

Kit off for Cancer Calendar 2013

PLEASE spread the word about this calendar,over 60 people bared all to make it, every one of them doing so because they have been affected by cancer in some way.It IS more than just a calendar, it represents the want to stand up & fight against cancer. Every two minutes somebody in the UK is diagnosed with Cancer, 100's of people dying every day, the only way we can change this is to raise money. These Cancer charities don't get goverment funding, they rely soley on people like KOFC to raise those funds needed for testing, equipment & drugs. The more money raised & given to them, the more chance of survival rates changing....
the more chance of lives being saved. Thank you, xxx jenny

www.kitoffforcancer.co.uk

R.I.P. to the two brave and courageous officers. PC Fiona Bone, aged 32 and PC Nicola Hughes, aged 23.

Greater Manchester Police is mourning the loss of two brave and courageous officers. PC Fiona Bone, aged 32 and PC Nicola Hughes, aged 23, tragically lost their lives whilst responding to an incident in Tameside on Tuesday 18 September. 

This is a very sad day in the history of the Force and a truly terrible day for the families of our colleagues. As well as collating condolences on social media, we have set up a book of condolence on our website. This allows you to leave messages of respect for their families, friends and colleagues. 

http://www.gmp.police.uk/mainsite/cond.htm

Jenny Stewart is fundraising for Cancer Research UK

Jenny Stewart is fundraising for Cancer Research UK